#LifeStyle Blog

 Empowering Knowledge About Sarcoidosis 

xoxoLisa 

 

www.about-sarcoidosis.com

  Life In Motion...

 

 

 

 

 

Exploring The World Of Sarcoidosis 

 

 

 

 

 

One Day At A Time!   

 

 

Webinar Links

■SAR-KOI-DOSIS■

 

 

■WILL DEMAND■

 

 

■YOUR■

 

 

■DUE DILIGENCE■

 

Webinar Links

 

Webinar Links

 About Sarcoidosis When You're@Home 

Adapting One Day At A Time...

#Sarcoidosis LifeStyle Insights 

 

 

 

About-Sarcoidosis. #Blog, I understand your journey! 

and so I hope you find valuable resources that help you along the way too.

Gain Insights, Helpful Tips & Resources To Empower Yourself!

Why-

I understand!

Because, I too have Sarcoidosis...

Committed to create awareness about the impact of Sarcoidosis on daily life; and offer information to individuals navigating this condition. Learn more about the manifestations and symptoms of Sarcoidosis through firsthand experiences shared on this blog.

Join Lisa Akridge, the founder shares her personal experience with Ocular, and Systemic Sarcoidosis.

Learn about the challenges, manifestations of symptoms, and the importance of not ignoring any signs and symptoms.

 

At "About-Sarcoidosis When You're @Home"

 

We are dedicated to empowering individuals living with Sarcoidosis!

Our #blog provides valuable insights and knowledge, about this inflammatory disease affecting people of all ages and backgrounds!

Sharing Personal Experiences

 

It's- not just...

My #Lifestyle Blog

It's 

Living with Sarcoidosis

 

One day at a time!

Embark on a journey with us as we delve into the world of sarcoidosis, sharing valuable insights and information...

 

xoxoLisa Akridge, Personal Blogger 

 About-Sarcoidosis #LifeStyle Blog

www.about-sarcoidosis.com

Empowering the SAR-KOI-DOSIS Community

Educate Thyself--  

Blog Letters xoxoLisa 

■Sarcoidosis■

■For Informational Purposes Only■

Living with Sarcoidosis

The Thing Is...

ABOUT-SARCOIDOSIS.

When You're@Home

Is...

You're Gonna Have 1,000+ Questions

About The Variations Of How

 

 

Sarcoidosis Makes You Feel When

You're @Home...

 

 

Sarcoidosis #Gear Informational News 

Exploring Insights, Strategies For Wellness &

LifeStyle Balance Managing Sarcoidosis!

 

About Sarcoid✔️

The challenges of Sarcoidosis, 

It is, what it is...

 

 

There's no cure yet!  

 

Solutions In Short, One being about Sarcoidosis--

Is It's really about...

 

A case management type approach to Sarcoidosis in Prolonging, the stages of Sarcoidosis as long as possible!

 

 

At About-Sarcoidosis When You're @Home, we understand the challenges of living with this chronic multisystem disorder. Sarcoidosis can affect various organs in your body, including the skin, eyes, and joints. Let's explore how this condition impacts your daily life.

 

 

Briefly, Highlighted--

🔲Empower Yourself with Knowledge🔲

Educate Thyself...

 

⤵️⤵️ ClickHere⤵️⤵️

Sarcoidosis can effect...

 

 Here's Some Of The  Body  Symptoms & Signs... 

 

--Of Sarcoidosis--

 

Pulmonary

  1. Pleuritic chest pain

  2. Hoarse voice

  3. Sinusitis, epistaxis, nasal polyposis

 

 

Neurologic

  1. Hearing loss, meningitis, seizures, dementia, depression, psychosis

  2. Facial paralysis

 

 

Cardiac

  1. Dysrhythmias. Heart block is common in younger patients.

  2. Pericarditis and/or heart failure

 

 

Immunologic

  1. Enlarged and tender lymph nodes in the neck, axillae, and groin

  2. Enlarged lymph nodes in the chest and around the lungs

 

 

Gastrointestinal

  1. Hepatomegaly

  2. Pancreatic sarcoidosis

 

 

Urologic

  1. Decline in renal function

  2. Hypercalciuria

  3. Granulomatous interstitial nephritis

  4. Kidney stone formation

 

 

Musculoskeletal

  1. Swollen and painful joints

  2. Acute and chronic arthritis

  3. Carpal tunnel is more common in patients with sarcoidosis

  4. Pain in the hands, feet, or other bony areas due to the formation of cysts

 

 

Ocular

  1. Red and teary eyes or blurred vision

  2. Anterior and posterior uveitis, retinal vasculitis

 

 

Integumentary

  1. Tender reddish lesions or patches on the skin or hypopigmented areas

  2. Papular and nodular sarcoidosis, nail changes, alopecia

 

 

#SAR-KOY-DOSIS #Gear

■ SAR-KOY-DOSI ■ Sarcoidosis ■ Sarcoid ■

 ■Resources■

Skin Problems

Sarcoidosis can manifest in the skin with symptoms like discolored skin, raised patches, sores, and bumps. These skin issues can be not only physically uncomfortable but also emotionally challenging to deal with.

 

                    Sarcoidosis can cause many skin problems, including:

 

Bumps: Small, tender bumps that can be red, purple, brown, tan, or skin-colored. They can be smooth or rough, and are often located on the shins, ankles, face, neck, or upper body.

Raised patches: Also called plaques, these can be smooth or scaly and can appear on the skin.

Discolored skin: Areas of skin that are darker or lighter in color.

Sores: Disfiguring lesions that can appear on the nose, cheeks, or ears.

Nodules: Growths under the skin, especially around scars or tattoos. Scars from previous trauma, surgery, venipuncture, or tattoos may become infiltrated and appear red or purple. 

Additionally, When the inflammation affects the skin, it is called ■cutaneous sarcoidosis■ or ■sarcoidosis of the skin■. Sarcoidosis of the skin can look many ways! The most common lesions are small bumps & broad, raised skin lesions/patches.

 

Neurologic Symptoms

Neurologic Sarcoidosis may present with vision problems, headaches, weakness, and numbness. These symptoms can significantly impact your daily activities and quality of life.

Musculoskeletal Impact

Sarcoidosis can affect your musculoskeletal system, leading to joint stiffness, muscle pain, bone lesions, and limited mobility. Managing these symptoms can be challenging and may require a personalized treatment plan.

Cardiac Effects

When it comes to the heart, Sarcoidosis can cause arrhythmias, heart block, cardiomyopathy, and pericarditis. It's crucial to monitor your cardiac health closely and work with healthcare professionals to manage these issues.

Frequently asked question!

What is sarcoidosis an how do you spell it...

It's--

SAR-KOI-DOSIS OR SAR-KOY-DOSIS  or Sarcoidosis an also known as  Sarcoid.

 

 

Also known as⤵️

 

Besnier–Boeck–Schaumann disease. 

 

#Sarcoidosis 

 

 

The name comes from the words "sarcoid" which means flesh

 

&

 

 

"osis" which means disorder.

 

Sarcoidosis 

When You're@Home

 

 

 

What Happens is...  Sarcoidosis is an inflammatory disease that occurs when the immune system overreacts, causing abnormal collections of inflammatory cells called granulomas to form in the body's organs. 

 

The immune system creates inflammation to help defend  against germs and sickness.

 

 

But in #Sarcoidosis, "Inflammation goes off track" and the cells in the immune system; Hence... form lumps, called granulomas in the body.

 

 

  • Over time, "Inflammation" may lead to permanent scarring and damage of organs!

So your tired!

 

Fatigue! 

 

-For most people living with sarcoidosis 

 

 Irregardless to any manifestation of Sarcoidosis... 

 

- No Amount Of Sleep Cures -

 

 

SAR-KOI-DOSIS Fatigue!

 

#It's Fyi...

 

-How  Do You  Know 

 

What You Don't Know...

 

Exactly!

 

 

Educate Thyself--

 

#Sarcoidosis Cognizance

 

With an "Emphasis" on...

 

#Symptoms

 

&

 

#Awareness

 

Of what your body is trying to tell you via., #Symptoms 

 

Blog Letters  xoxoLisa Akridge

Insights On Sarcoidosis & Navagiating Life With Sarcoidosis!

Me, You & Sarcoidosis!

 

Living with sarcoidosis...

 

The

 

Chaos

 

Of

 

Inflammation 

 

&

 

Immunity

 

Imbalance!

Dicussions to have with your Doctor • This Website #Blog Is For Informational Purposes Only.

A Multidisciplinary Approach--

⤴️

Rheumatologist  🔎

⤴️

Endocrinologist 🔎

 

With SAR-KOI-DOSIS ...

 

In addition to a-

Primary Care Physician

Most scarcodosis patients 

Will  usually have a Multidisciplinary

care team!  

Ergo., Specialists  especially for 

Systemic Sarcoidosis!

Our goal is to raise

awareness about the

various manifestations

of

Sarcoidosis symptoms, highlight also 

the impact of fatigue, and provide a supportive community for individuals managing this disease. Together, we can overcome the challenges and share valuable insights and information!

■Informational■ 

■Resources■

 

An Individualized Sarcoidosis Treatment Plan-

Is Needed Based On

What Part Of The Body

Sarcoidosis Is Affecting!

⤴️

Cardiologists 🔎

 

Living with Sarcoidosis can be challenging, especially when managing dealing with fatigue

 

 

- What's  it called?

 

 

When you wake up tired-

 

 

When you wake up exhausted!

 

 

When you Slept all night...

&

Sleep all day-

 

 

When you wake up with zero energy-

 

 

■Its called  Sarcoidosis■

 

Awareness!

⤴️

Immunologist 🔎

⤴️  ⤴️

■Musculoskeletal, Rheumatology, Immunology■

Informational #Sarcoidosis Webinar 

■ This Webinar  listed above is very informative ■

| Helpful Links |

Sarcoidosis✔️ -Plan of Care-Link✔️

SAR-KOY-DOSIS 

Building On It...

🔲Webinar🔲               Listen Now...

(SAR-KOI-DOSIS)

#Stuff

 #LifeStyle Blog

About

Sarcoidosis 

When You're@Home

Who knew!

That....


For some, too much....

#Sunshine

or

Too much Vitamin D

 

 

Can cause high calcium levels in the blood--

 

& urine which can lead to kidney

 

problems for people with...

 

Sarcoidosis!

 About-Sarcoidosis #LifeStyle Blog

 

Its not a case of 1st impressions If you will...

As I've I had Sarcoidosis for more then 10+yrs!

 

Literally, as a patient diagnosed with sarcoidosis I found that the most helpful information; about Sarcoidosis comes from Sarcoidosis Webinar's #JS... Usually, no healthcare provider has time to go into detail about Sarcoidosis! 

 

⤵️⤵️ Read more... ⤵️⤵️

 

 

- I too have Sarcoidosis...

XoxoLisa

My unknown rashes year's ago pre-sarcoidosis diagnosis, at the time were bad! I didn't know I had sarcoidosis at the time; To the point when at a store, people would not hand me my change an every time put my change on the counter! as not to touch me... I wish I had taken pictures back then but I didn't.

The above is a pic of my arm... I seldom get a skin scarcodosis flare but back in the day it was a straight 7yrs. I was misdiagnosed from Dermatitis to Eczema to Rosacea; when it was #Sarcoidosis.. I was shocked when I had this flare last year when it had been years since I had a sarcoidosis rash. Sarcoidosis rashes on people of color may not look the same in medical books an the #Variations of sarcoidosis an subacute on the skin an skin color.

The most common cutaneous manifestations of Sarcoidosis on the skin are: macules, papules, plaques, subcutaneous nodules, LP, scar sarcoidosis, and erythema nodosum. I Found that, Skin flares of sarcoidosis on the skin will hugely vary as to what they look like, especially on skin of people of color.

I have also had the classic papules, as little as 1 or two singular sarcoidosis papules; which I find happened when I was skipping my medication or forgetting. Also, me sitting in the sun for sometimes as little as 15 minutes or more will cause me to have a sarcoidosis skin flare; and as well few days later after being in the sun will cause me to have sarcoidosis symptoms to also include sarcoidosis papules/skin flares.

 

Fyi:  Sarcoidosis can appear on the face in many ways, including small bumps called papules and larger raised patches called plaques:

Papules

These small bumps can be reddish brown, violet, tan, brown, or the same color as your skin. They're usually painless and often appear around the eyes or on the neck. 

 

■Other skin manifestations of sarcoidosis include■

Lupus pernio

Large bluish-red or dusky purple nodules and plaque-like lesions on the nose, cheeks, ears, fingers, and toes.

 

Maculopapules

Red-brown to purple lesions that are less than 1 cm in diameter and are found on the face and neck.

 

 

- Anyone Can Get Sarcoidosis

&

Sarcoidosis Effects Everyone Differently!  

 

 

   Blog Letters  -Lisa Akridge 

 

When know one you know has sarcoidosis...

When You're@Home!

- An Introduction Webinar  -

More+ ...

STOP

EXPLAINING 

WHY

YOUR 

 

So... So...

 

Tired!

 

It's Called Sarcoidosis!

 

 

Webinars

Ton's

Of

Informational 

Links+more...

 

Figuring It Out✔️

⏫️⏫️Listen now⏫️⏫️

Helpful Links 

&

Health Tips✔️

Sarcoidosis Webinars

Resources✔️

 

Resources ✔️

Resources ✔️

   Blog Letters  xoxoLisa

About Sarcoidosis When You're@Home 

The Journey Of Sarcoidosis- can be mentally and physically exhausting!

Depression  &  Sarcoidosis  ⤵️⤵️click below

Socials

 

Our community about-sarcoidosis provides information to help you navigate through your journey with Sarcoidosis.

#Sarcoidosis LifeStyle Insights 

About Sarcoidosis. 

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©2023 About-Sarcoidosis Hartford, Connecticut 🇺🇲 This website www.about-sarcoidosis.com is not an is not meant to be comprehensive and should only be used for informational purposes only.

~ Lisa Akridge ~ About Sarcoidosis  #LifeStyle Blog 

About Sarcoidosis When You're@Home