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If Sarcoidosis had started anywhere else ..... other then my eye it probably would have taken even years longer for a sarcoidosis diagnosis
#IJS
Even, with it in my eye it seemed as if no one wanted to be the one to diagnose me...I remember, asking one specialist for a lung biopsy early on and the response was the treatment would be the same... meaning Methotrexate. Hence, I did not get a lung biopsy. I simply, wanted a definitive answer because even though sarcoidosis was in my eye, I was for the most part being treated as if I didn't have sarcoidosis in my eye; with respect to symptoms that I was having that it was not just in my eye.
I'm sure for those that live near a sarcoidosis clinic much of my experience with sarcoidosis would have been different.... anyone who lives near a sarcoidosis clinic is lucky if you will with respect to an early diagnosis #IJS...
My journey as a result.... depending, on where sarcoidosis starts in your body it could be a long journey to a diagnosis.
- An by long journey I mean years...
- Lisa