About-Sarcoidosis #LifeStyle Blog

Its not a case of 1st impressions If you will...

As I've I had Sarcoidosis for more then 10+yrs!

Literally, as a patient diagnosed with sarcoidosis I found that the most helpful information; about Sarcoidosis comes from Sarcoidosis Webinar's #JS... Usually, no healthcare provider has time to go into detail about Sarcoidosis! 

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- I too have Sarcoidosis...

XoxoLisa

   Blog Letters  -Lisa Akridge 

When know one you know has sarcoidosis...

When You're@Home!

My unknown rashes year's ago pre-sarcoidosis diagnosis, at the time were bad! I didn't know I had sarcoidosis at the time; To the point when at a store, people would not hand me my change an every time put my change on the counter! as not to touch me... I wish I had taken pictures back then but I didn't.

The above is a pic of my arm... I seldom get a skin scarcodosis flare but back in the day it was a straight 7yrs. I was misdiagnosed from Dermatitis to Eczema to Rosacea; when it was #Sarcoidosis.. I was shocked when I had this flare last year when it had been years since I had a sarcoidosis rash. Sarcoidosis rashes on people of color may not look the same in medical books an the #Variations of sarcoidosis an subacute on the skin an skin color.

The most common cutaneous manifestations of Sarcoidosis on the skin are: macules, papules, plaques, subcutaneous nodules, LP, scar sarcoidosis, and erythema nodosum. I Found that, Skin flares of sarcoidosis on the skin will hugely vary as to what they look like, especially on skin of people of color.

I have also had the classic papules, as little as 1 or two singular sarcoidosis papules; which I find happened when I was skipping my medication or forgetting. Also, me sitting in the sun for sometimes as little as 15 minutes or more will cause me to have a sarcoidosis skin flare; and as well few days later after being in the sun will cause me to have sarcoidosis symptoms to also include sarcoidosis papules/skin flares.

Fyi:  Sarcoidosis can appear on the face in many ways, including small bumps called papules and larger raised patches called plaques:

Papules

These small bumps can be reddish brown, violet, tan, brown, or the same color as your skin. They're usually painless and often appear around the eyes or on the neck. 

■Other skin manifestations of sarcoidosis include■

Lupus pernio

Large bluish-red or dusky purple nodules and plaque-like lesions on the nose, cheeks, ears, fingers, and toes.

Maculopapules

Red-brown to purple lesions that are less than 1 cm in diameter and are found on the face and neck.